Category: Health and Wellness
Ok so I was wondering if anyone here has ROP and as a result of it had a detached retina and had to get it repaired? I was wondering if you'd post how your surgery went and if you gained or lost vision do to it? did you have more then one detachment in the same eye?
I had a detached retina last year in April and it was repaired and I gained some vision back in that eye but now it seems my retina could possibly be detaching again. I'm just curious to see how others have faired with the same problem.
Thanks
Hey, I have had three surgeries on my left eye to try and repair my retina, but no luck. I also was a rop baby and was born three months premature. The first surgery was successful for only a month, then had to get it repaired again. The Doctors had to put some kind of oil behind my retina in my left eye to hold it in place but while I was under , my eye bled and they had to re do everything. As a result of this I was able to see nothing out of my left eye and I have 2700 vision in my right. Then in the summer of 2003, they decided to go for a third try , but no luck. so to this day, I'm totally blind in my left eye and I have 2700 vision in my right. hope this helps.
Cheers,
Kat
a bit the same, i was born more than four months premature, so my retners were undeveloped, they became detatched, doctors couldn't repare them so i only have light posseption
Hey,
I'm also someone who developed ROP as a result of premature birth, i did have surgeries when i was a child to try fix them but they didn't work out and i actually lost both my eyes when i was 10 because of some kinda weird infectio they couldn't treat.
I hope they can help you
Pisces
Apparently I have ROP because I was born so early and because I was so small and they didn't think I'd survive, they put me in an incubator, but apparently they gave me too much oxygen which messed my eyes up. I now have no vission in my right eye and some light perception in the left. I can't remember much, but I was told when I was younger I used to be able to see shadows and stuff, but my sight if that's what you can call it has disappeared over time and I'll lose the light perception in my left eye eventually. I haven't noticed much change though, because it's happened so gradually, but I think if I did lose my light perception I'd be lost. Completely.
i also have rop i was also put in an incubater i have no sight in my right eye i have light perseption in my left eye i can tell if i'm coming up to a door or a wall but i can only tell what it is i'm coming up to if i no where i am i can't actually see the shape of anything i guess its like seeing a shaddow
I'm the same way as Harmony actualy, but I do have some vision. They performed laser surgery on my right eye, and did Crio in my left eye. As a result, I have 2 over 100 vision in my right, and verry little light perception in my left. I've been told that my visual acuity is in the bottom of my eye because when I look at people, I've been told i'm really looking at the ceiling. I also have nastagnus (SP?) so monoculars just went right out the window. :D
I was born at twenty-three weeks gestation, and had to be placed in an incubator. Like several people before me, since my lungs were tiny and my parents, the doctors, and the staff at the neonatal intensive care unit were concerned about not losing me, I was also given too much oxygen, which resulted in the development of retinnopathy of prematurity.
I had a couple of lazar optic surgeries before age one. I think there were two on my right eye and one on my left eye that were done, but I can't recall if my parents actually told me that part. Anyway, as a result, I could only see light and shadows out of my right eye and nothing out of the left.
In June, 2005, the right eye had to be removed due to uncontrollable pain, so I'm totally blind now. Naturally, before surgery, I was quite nervous, but afterword, the adjustment wasn't as scary for me as I thought it would be.
I'm a rop baby too, was born in august supposed to be born in december. Too much oxygen and a failed reattachment surgery in my left eye. The eye ruptured so I have a glass left eye and some light perception in my right. Does anyone elses eyes move without any control? Folks think I'm either down syndrome or get weirded out by the wandering eyes, I can't help it. I've been approached by strangers telling me I need to wear glasses. just one of those things I guess. Tiffany
yes my eyes move and i can't control them that's how people can tell i can't see and also because my eyes are small
I have ROP as well.
I was born four months early and the retina in my right eye was underdeveloped, and it got detatched somehow. I can see some stuff out of my left eye, but have no vision whatsoever in my right.
If you want to know more, just look at my profile. It's all explained there.
I am also the same, but no surgeries for me so far. The doctors were negative about it, so nothing was done for me.
I've had more retina reattachment surgeries then I care to count. But I have God willing be surgery free for the past twelve years. I pray it stays that way. But I know what it's like and after awhile, the surgery became routine for me. If you need to talk, I'm here and I'll try to listen and help.
God bless
Hullo all, It seems there are a lot of us who had too much oxygen. Since losing my light perception because of it, I now have very odd sleep patterns which vary with each month. I can be up all night for several nights and then it goesback to normal. Also the sensation of very bright lights shining inside my eyes but I know they're being produced by the brain itself. Does anyone else suffer like this? The old Curmudgeon (in a good mood really, it's just a name).
I can understand the part about having lights shine in your eyes. for me, that only happens when I hear sound pass directly in front of me. It really makes playing audio games very interesting. lol
I went blind at two-months-old due to rop. I had nine operations all under the age of two. One of them worked for a few hours and then I lost the sight. Another was experimental and ruined one of my eyes so that, if I ever do see naturally, it'll be through one only. To be honest, I'm not even sure if they can ever repair the retina, since I'm 26-years-old now. But if they catch it early, as they did with you, they might be able to help. Alot has changed. As for me, I'm waiting for the Brain Port to become commercially available so that I can demo it and see if I want one.
Man oh man you all got my sympathies for sure. Not that you're looking for pity and I mean no condescension ... but so many surgeries, and on the eyeball to boot! That had to be really tough, that and the hopes to be raised and then dashed again.
I was born 3 months pree mature, and had 3 eye surgerys as a baby. I don't remember much of anything, accept mom told me that they gave me too much oxijon and there for, my right eye is shot. People think my eyes are always closed, but they arn't, it's just they are small in size. Due to me being on a surtain eye drop for I wanna say, for 4 years because of really bad eye infections caused by my allergies,, my cornia has been damaged beyond repair. the drop was tobradex. let's just say that now, I can no longer see stuf in glasses now, and every now an then I have totally blinded periods to where I can't see anything at all, or I start seeing really bright lights shyning in my eyes as well. The doctores who I went to to see about my cornia were surprised that I could still see at all becuase they said, that most babys that have the same condition as many of us do can loose there site over time, so they called me one of the lucky ones. but i'm here to talk if i'm needed, just pm me or something and i'll be glad to talk to anyone about this.
zack